OACS – Hillingdon Community Co-ordinator Assistant
Details of the Charity:
OACS (Organisation for Anti-Convulsant Syndrome) were created to support those families with children that have been prenatally affected by anti-epileptic medication. OACS was established in January 1999 and became a registered Charity in 2006.
Fetal Anti-Convulsant Syndrome is a complex disability which includes congenital abnormalities, autism, learning difficulties, poor muscle tone amongst many other problems. It is not known as to why some mothers are susceptible but it is believed that it may be due to a genetic disposition. We are a proactive organisation creating initiatives in order to develop a greater awareness of FACS, whilst generating opportunities that will support these families.
The challenges these families face are unique; they are often single parent families (parent cares for the disabled child, who in turn has to care for their disabled mother). With the drug sodium valproate it is now recognised that there is a 30 – 60% likelihood that the mother has a disabled child (depending on the amount taken). If one child has FACS there is a 55% likelihood of having a second child with the syndrome.
Details of the Volunteering Opportunity:
OACS is looking for someone that can promote an awareness of Fetal anti-convulsant Syndrome, and to support any families within the Hillingdon area.
This may be useful for someone interested in working within the medicine or social care.
- Work with the secretary and Hillingdon Community Development co-ordinator to identify those that may have Fetal Anti-Convulsant Syndrome. To do this you will need to identify approach and interact within other charities and medical bodies in the Hillingdon area.
- Seek to develop, report and record a local directory and strategy for the Hillingdon Borough that could potentially be used in other areas.
- Develop a community based group of families affected by Fetal Anti-Convulsant Syndrome.
Hours to be negotiated. Home based mainly but any travel expenses will be reimbursed
- Applicants will need to have a good understanding of Equality and Diversity as they will be dealing with a people who have disabilities and come from a variety of cultures.
- Sincerity, patience, tact and the ability to earn the trust of others
- Excellent listening skills and confidence in talking to people both in groups and on a one-to-one basis
- An basic understanding of related policies would be ideal
- Good communication skills
- Ability to write reports
- Confident with strong organisational skills
- Capable of working both alone and as part of a team
- Enthusiasm, commitment and drive
- Your volunteer hours will be recorded and added the your H.E.A.R and they will also count towards the Brunel Volunteering award
- You will be given an induction course and training to improve your understanding of Fetal Anti-Convulsant Syndrome.
- You will receive ‘on the job’ training and will have the opportunity to both study and experience policies in action
- Further training opportunities may be available