OACS – Fundraising Event Co-Ordinator
Details of the Charity:Share this
OACS (Organisation for Anti-Convulsant Syndrome) was created to support those families with children that have been prenatally affected by anti-epileptic medication. OACS was established in January 1999 and became a registered Charity in 2006.
Fetal Anti-Convulsant Syndrome is a complex disability which includes congenital abnormalities, autism, learning difficulties, poor muscle tone amongst many other problems. It is not known as to why some mothers are susceptible but it is believed that it may be due to a genetic disposition.
We are a proactive organisation creating initiatives in order to develop a greater awareness of FACS, whilst generating opportunities that will support these families. The challenges these families face are unique; they are often single parent families (parent cares for the disabled child, who in turn has to care for their disabled mother). With the drug sodium valproate, it is now recognised that there is a 30 – 60% likelihood that the mother has a disabled child (depending on the amount taken). If one child has FACS there is a 55% likelihood of having a second child with the syndrome.
Details of the Volunteering Opportunity:
OACS are looking for a team of fundraisers to organise and run fundraising activities.
You will be required to co-ordinate, organise and manage a fundraising project.
Ideally this would be an activity that generates a greater awareness of FACS.
- Strong organisational skills
- Good team working
- Commitment to manage a project with lots of enthusiasm.
- Creativity – ideas generation
- Motivate others
- You will receive an induction course about feta anti-convulsant syndrome and the activities of OACS.
- Other training opportunities may be available
- Travel expenses will be reimbursed
- Hours volunteered will be recorded on your H.E.A.R - which goes on your permanent university record
- All hours will contribute towards your Brunel Volunteers Award, which leads to an invitation to the annual Brunel Volunteers Awards Ceremony in May